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Haikda research
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APPROVED BY ETHICS

TOGETHER - Tools for growing epilepsy trial and health awareness

A study in collaboration with researchers at the University of New South Wales for co-designing tools for increasing epilepsy clinical trial awareness.


Inclusion Criteria:

  1. Patients with epilepsy or a family/caregiver/guardian caring for a person with epilepsy
  2. Willing and able to attend workshops 
  3. Have participated in clinical trials in the past


ABOUT THE TRIAL

  • Reimbursement for participation
  • Online workshopping
  • Allowance for community awareness

RECRUITING PATIENTS

BEYOND - Cannabidiol in children and adults with Developmental and Epileptic Encephalopathy (DEE)

 A pilot study to investigate the effect of Cannabidiol* on quality of life and beyond-seizure outcomes in children and adults with DEE.


* This will be a TGA-approved Cannabidiol medicine for epilepsy


Inclusion Criteria

  1. Are 2 years of age or older.
  2. Have Developmental and Epileptic Encephalopathy (DEE)
  3. Have countable motor seizures.
  4. Agree to complete the procedures and agree to sign the informed consent


Exclusion Criteria

  1. You have seizures that are secondary to an infection
  2. Have a history or current presence of any significant medical or surgical condition other than a DEE
  3. Have previously experienced intolerance to Cannabidiol or an allergic reaction to sesame seed/oil.


ABOUT THE TRIAL

  • All online appointments with a qualified neurologist
  • Free Cannabidiol medicine is delivered directly to your home. 
  • All clinical assessments with a nurse in your home.
  • All blood tests are conducted in your home.
  • Reimbursement will be offered for all research appointments.


Learn More

STUDY COMPLETED

PACIFIC -Patient-centric epilepsy clinical trial model for improved health outcomes with Cannabidiol

Mixed methods study to co-design clinical trials with epilepsy patients, epilepsy advocacy groups, clinicians and researchers. 


Inclusion

  1. A person with epilepsy, a carer, a clinician or researcher in epilepsy
  2. Willingness to participate in workshops
  3. Willingness to complete surveys and interviews

ABOUT THE TRIAL

  • This will develop a clinical trial protocol tailored to the epilepsy community
  • Reimbursement will be offered for research activities

STUDY COMPLETED

CARE NSW - Cannabinoids for Symptom Control in Advanced Cancer, an Open-Label Prospective Trial

An open-label study to profile how advanced cancer patients use a range of cannabis medicines for symptom relief to assess dose, efficacy, safety, pharmacokinetics and pharmacodynamics.


Inclusion

  1. Aged 18 years or older.
  2. Has provided written Informed Consent for participation in this trial.
  3. Confirmed advanced cancer (any) with or without stable disease.
  4. Predicted life expectancy of 3 to 12 months at the time of consent
  5. Persistent symptoms of anorexia, nausea or refractory pain
  6. Willingness to complete all research activities.

ABOUT THE TRIAL

Participants can continue to receive standard concomitant care and interventions, such as chemotherapy and radiotherapy, and take medications for other conditions as usual in the advanced care population 


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